Family information directory

Addison’s Disease Self Help Group is a national charity which offers advice and support to people diagnosed with Addison’s disease (or adrenal insufficiency). They provide advice and information for patients and their families, information for healthcare professionals and emergency medical advice for patients. Read more

The Patients Association is a registered charity which gathers the opinions of patients on health and social care issues. This information is used to campaign for improvements in services across the UK. Their motto is 'Listening to Patients, Speaking up for Change'. The Patients Association… Read more

They provide family support and Ofsted 'Outstanding' educational services for babies, toddlers and preschoolers who are deaf at their purpose-built family centre in Portsmouth, Hampshire. They also offer regular sessions for children with unaided hearing loss, and for children with additional and/or more complex needs… Read more

The Salvation Army (Christian Church and Charity) is a national charity offering unconditional friendship, and practical help to people of all ages, backgrounds, and needs. Read more

Endometriosis UK is a registered charity supporting women living with endometriosis. They provide information about endometriosis on its website through downloaded and printable materials. They also have a range of support services such as: support groups, a telephone helpline and an online community. Read more

A charity offering support, information, advice and guidance support for those with Down’s Syndrome and an associated cardiac condition, their families and carers at every stage of life from pre-natal diagnosis, through to adulthood. Read more

Hypermobility Syndromes Association is a registered charity offering both practical support and health and care information to people who have a hypermobility syndrome or those who care for them.    The Hypermobility Syndromes Association provides 1-1 advice, a telephone helpline, a Facebook group, information through their website… Read more

Muscular Dystrophy UK is a charity supporting individuals, families, and professionals affected by muscle-wasting conditions. It provides a range of services and resources including information on its website, support groups and a helpline.  Read more

The Brain & Spine Foundation offer a range of support services such as: free helpline, peer support groups and downloadable health information. Read more

Place2Be provides emotional and therapeutic services in primary and secondary schools, building children's resilience through one to one and group counselling Read more