Family information directory

The Gorlin Syndrome Group is a support network offering guidance and information to patients, their families, and carers whose lives are affected by Gorlin Syndrome.   Read more

The ISG is committed to the ongoing provision of an information network and support structure for individuals and families affected by ichthyosis Read more

The Flipper Club Swim School welcomes children aged 18 months through to adults. They have a range of courses to suit all ages and abilities, from Adult & Child lessons through to children’s Learn to Swim classes, Youth Club Sessions, Adult Swimming Club and advanced… Read more

The Red Oak Family Centre is based at the heart of the Merstham community and is a 'one-stop shop' for children under 5 and their families. It provides advice, information, support, an onsite Pre-school, courses, activities and more. YMCA Horley Young People and Family Centre works… Read more

Woking Eating Disorder Support (Woking EDS) provide monthly self-help groups for people coping with an eating disorder and their careers. Read more

The Erb’s Palsy Group is a registered charity offering advice, information and support to families affected by Erb’s Palsy. The Erb’s Palsy Group give support to parents, adults, and children, put parents in contact with each other and hold annual events for families. It also produces information… Read more

Myotonic Dystrophy support group offers friendship and support to all those affected by Myotonic Dystrophy. The charity has a central helpline and contacts throughout the UK as well as links abroad. Read more

The Birthmark Support group is a registered charity which provide support and information to anyone who has a birthmark, and to support not only the person with the birthmark, but the whole family and friends network. Read more

Addison’s Disease Self Help Group is a national charity which offers advice and support to people diagnosed with Addison’s disease (or adrenal insufficiency). They provide advice and information for patients and their families, information for healthcare professionals and emergency medical advice for patients. Read more

The Kawaski Support Group is a registered charity which provides support for families of children with Kawasaki syndrome, they have a national helpline. Read more