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    The Fragile X Society

    The Fragile X Society is a registered charity which provides support and information to parents whose children have been diagnosed with Fragile X Syndrome and to professionals working with families. The Fragile X Society provides a national support and information service and support groups.   Read more

    Rood End House6 Stortford RoadGreat DunmowEssexCM6 1DA

    01371 875100

    JABS (Justice, Awareness and Basic Support)

    Jabs is a support group for parents who believe their children have suffered severe harm or have died following childhood vaccinations. Read more

    Sliding Doors Programme

    The Women's Support Centre run the Sliding Doors programme which is for girls 14 to 18 who are deemed at risk of child sexual exploitation. We have a family support worker who runs regular group sessions with the girls to support, empower and make them… Read more

    Women's Support Centre19A High StreetWokingGU21 6BW

    01483 726621

    Sheila Lauchlan - Counselling and Psychotherapy

    A relationship/family psychotherapist and counsellor based in Cobham, offering therapy to individuals, couples and families. Experience in working with all age groups, including adolescents, work can be short term or focused. Read more

    CobhamKT11

    01932 866171

    PANS PANDAS UK

    PANS PANDAS UK is a Charity which was established by a group of parents with children who are affected by PANS or PANDAS.  PANS and PANDAS are a set of conditions which result in inflammation of the brain, causing a variety of neuro-psychiatric conditions such… Read more

    Cruse Bereavement Care

    Cruse Bereavement Care offers support, information and advice to anyone who has been affected by a death. It provides counselling on a one to one and group basis and also provides education and information to anyone supporting bereaved people. Read more

    Central Office Address (administration only):PO Box 800RichmondTW9 1RG

    0808 808 1677

    Aplastic Anaemia Trust

    The Aplastic Anaemia Trust is the only charity in the UK dedicated solely to research into aplastic anaemia and the support of patients and their families.  It provides help through support groups, by telephone and information available through its website. Read more

    0870 487 0099

    NPUK

    The Niemann-Pick Disease Group (UK) is a registered charity offering support and information to families affected by any type of Niemann-Pick disease. It provides an information and advice service to health and social care professionals as well as to families and carers. Read more

    Suite 2, Vermont HouseConcordWashingtonTyne and WearNE37 2SQ

    01914 150693

    HemiHelp

    HemiHelp is a charity providing support and information to people with Hemiplegia and their families. It provides a telephone helpline, home visiting service and details of local groups as well as publications including a magazine, booklets and information sheets. Read more

    209-211 City RoadLondonEC1V 1JN

    020 7608 8700

    CJD Support Network

    The CJD Support Network is a patient support group providing emotional and practical help and support for people with all strains of Creutzfeldt-Jakob disease, their carers and concerned professionals. Read more

    PO Box 346Market DraytonShropshireTF9 4WN

    0800 0853527
    • Updated: 15 May 2021

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