Family information directory

SUDEP Action are a voluntary organisation dedicated to supporting families affected by Sudden Unexpected Death in Epilepsy and other epilepsy related deaths, together with promoting aware & research around SUDEP. Read more

The Childhood Eye Cancer Trust (CHECT) is a charity dedicated to helping babies, children and their families affected by retinoblastoma, a rare form of eye cancer. It provides support, raises awareness, and funds research. Read more

The Erb’s Palsy Group is a registered charity offering advice, information and support to families affected by Erb’s Palsy. The Erb’s Palsy Group give support to parents, adults, and children, put parents in contact with each other and hold annual events for families. It also produces information… Read more

A support group for parents of children with Autistic Spectrum Disorder. Meets regularly for mutual support and information. Read more

The Ann Craft Trust (ACT) is a registered charity which aims to protect disabled children and adults at risk. It provides information, safeguarding training, consultations, and serious case reviews. The Ann Craft Trust also works closely with organisations and individuals across the UK to raise awareness… Read more

ARCOS is a UK national charity, working to improve life for children and adults who have communication, eating, drinking, and swallowing difficulties. These conditions are often complex, persist throughout life and require specialized, long-term treatment. We promote and provide specialist training, comprehensive therapy, and support… Read more

Supports families whose children and relatives have fragile X syndrome – the most common cause of inherited learning disabilities. This local branch of the national charity meets monthly and provides information and support in Surrey. Read more

Caudwell Children is a charity which provides family support services, equipment, treatment and therapies for disabled children and their families. It also provides a programme for talented disabled athletes and a dream holiday scheme for children with life threatening conditions. Read more

Independence at Home provide grants for people with a disability or long-term illness towards the cost of adaptations, equipment, or other things to help you to manage at home. The grant must go towards an item to assist a child to live at home. They… Read more

The Florence Nightingale Aid in Sickness Trust provides grants to help people in need who are ill, convalescent or disabled. These are used to provide medical and household aids to assist people to manage at home and live as independently as possible. Read more