Family information directory

Supports families whose children and relatives have fragile X syndrome – the most common cause of inherited learning disabilities. This local branch of the national charity meets monthly and provides information and support in Surrey. Read more

Caudwell Children is a charity which provides family support services, equipment, treatment and therapies for disabled children and their families. It also provides a programme for talented disabled athletes and a dream holiday scheme for children with life threatening conditions. Read more

Independence at Home provide grants for people with a disability or long-term illness towards the cost of adaptations, equipment, or other things to help you to manage at home. The grant must go towards an item to assist a child to live at home. They… Read more

The Florence Nightingale Aid in Sickness Trust provides grants to help people in need who are ill, convalescent or disabled. These are used to provide medical and household aids to assist people to manage at home and live as independently as possible. Read more

Strongbones Children’s Charitable Trust is a national registered charity set up to help alleviate the pain, suffering and financial burden of families who have children suffering from brittle bone disease, bone cancer, scoliosis, arthritis, and all other conditions of the bone. Their grant scheme for individuals… Read more

The Children and Young People’s Mental Health Coalition brings together leading charities to campaign jointly on the mental health and wellbeing of children and young people. The coalition aims to ensure that their unified voice is heard to campaign with children and young people on… Read more

Corpal is a support group and charity run by parents, families and carers of children and adults who have ACC (Agenesis of the Corpus Callosum) or Aicardi Syndrome. Online enquiry form Read more

The Brainwave Programme aims to develop the maximum potential of each child by taking an integrated approach to their physical and cognitive development and by aiming to enhance a child's social skills and emotional well-being.   Read more

The Daisy Garland is a family-run, national, UK registered charity whose aim is to offer help and support, to those whose lives are touched by drug resistant Epilepsy. The Daisy Garland provide support through funding Ketogenic Dietitians who work within NHS hospitals throughout the UK as… Read more

The Royal Hospital for Neuro-Disability is national medical charity which combines traditional practice with specialist therapies and life changing technologies to assist disabled adults with acquired brain injuries and degenerative neurological conditions. Read more