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Batten Disease Family Association (BDFA)

The BDFA offers informed guidance and support to families and the professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and a cure. Read more

209-211 City RoadLondonEC1V 1JN

07876 682589

British Association for Music Therapy (BAMT)

The BAMT is a registered charity which acts as the professional body for music therapists and a source of information, support, and involvement for the public. Read more

2nd Floor, Claremont Building24-27 White Lion StreetLondonN1 9PD

020 7837 6100

SUDEP Action

SUDEP Action are a voluntary organisation dedicated to supporting families affected by Sudden Unexpected Death in Epilepsy and other epilepsy related deaths, together with promoting aware & research around SUDEP. Read more

Epilepsy Bereaved, 12aMill StreetWantageOxfordshireOX12 9AQ

Main Office : 01235 772850 Support line : 01235 772852

Childhood Eye Cancer Trust

The Childhood Eye Cancer Trust (CHECT) is a charity dedicated to helping babies, children and their families affected by retinoblastoma, a rare form of eye cancer. It provides support, raises awareness, and funds research. Read more

The Royal London HospitalWhitechapel RoadLondonE1 1BB

020 7377 5578

Erb's Palsy Group

The Erb’s Palsy Group is a registered charity offering advice, information and support to families affected by Erb’s Palsy. The Erb’s Palsy Group give support to parents, adults, and children, put parents in contact with each other and hold annual events for families. It also produces information… Read more

60Anchorway RoadCoventryCV3 6JJ

02476 413 293

Autistic Spectrum (AS) Support Group

A support group for parents of children with Autistic Spectrum Disorder. Meets regularly for mutual support and information. Read more

Carers Support SpelthorneSpelthorne Borough CouncilKnowle GreenStaines upon ThamesMiddlesexTW18 1XA

0303 040 1234 01483 302748

Ann Craft Trust

The Ann Craft Trust (ACT) is a registered charity which aims to protect disabled children and adults at risk. It provides information, safeguarding training, consultations, and serious case reviews. The Ann Craft Trust also works closely with organisations and individuals across the UK to raise awareness… Read more

Centre for Social WorkUniversity of NottinghamUniversity ParkNottinghamNG7 2RD

0115 951 5400

Association for the Rehabilitation of Communication and Oral Skills (ARCOS)

ARCOS is a UK national charity, working to improve life for children and adults who have communication, eating, drinking, and swallowing difficulties. These conditions are often complex, persist throughout life and require specialized, long-term treatment. We promote and provide specialist training, comprehensive therapy, and support… Read more

Hatherton LodgeAvenue RoadMalvernWorcestershireWR14 3AG

01684 576795

Fragile X Society (Surrey Branch)

Supports families whose children and relatives have fragile X syndrome – the most common cause of inherited learning disabilities. This local branch of the national charity meets monthly and provides information and support in Surrey. Read more

Helpline : 01371 875100

Caudwell Children

Caudwell Children is a charity which provides family support services, equipment, treatment and therapies for disabled children and their families. It also provides a programme for talented disabled athletes and a dream holiday scheme for children with life threatening conditions. Read more

Caudwell International Children's CentreInnovation WayKeele Science & Innovatio ParkNewcastle-under-LyneST5 5NT

0345 300 1348
  • Updated: 17 May 2022

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