Family information directory

SANE is a mental health charity which aims to improve the quality of life for anyone affected by mental illness. SANE offers emotional support through a helpline, forum, and text service. It also provides a virtual community to the young as well as campaigns aimed… Read more

The Ataxia-Telangiectasia (A-T) Society is a registered charity which works to improve quality of life and care for people living with Ataxia-Telangiectasia while promoting research to lengthen lives and find a cure. The society provides services such as clinics, counselling, family support workers as well as newsletters,… Read more

The Anna Freud Centre is a national charity dedicated to children's emotional wellbeing. It helps young people with mental health problems providing treatment for children and support for their parents. It also trains professionals who work with children and carries out research into effective ways… Read more

The Artemis Team is a service which helps support young people, young mothers, and people with special needs, to prepare and assist them with independent living. They support young people with housing, finding education and training as well as providing advice around life skills. Read more

CICRA is a charity dedicated to creating a wider understanding of Crohn’s Disease and Ulcerative Colitis. It provides support and information for affected children and their families, through telephone and email as well as through booklets and newsletters.  It also raises funds to support approved medical and scientific… Read more

Shine, previously (ASBAH), helps people get the best out of life by providing specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, and carers.  Read more

Meru is a charity that designs and manufactures specialised equipment for children and young people with disabilities. They aim to design and make bespoke disability products to meet your exact need. They can also make modifications to existing products and repair damaged equipment as well… Read more

Children’s Chronic Arthritis Association (CCAA) is a charity run by parents and professionals to provide a support network for children with Arthritis and their families. It offers emotional and practical support to maximise choices and opportunities and raise awareness of childhood arthritis. They also organise family… Read more

Bliss is a special care baby charity that provides vital support and care to premature and sick babies. Their confidential helpline offers a listening ear, emotional support, and information to families whose baby is in, or has been in, neonatal care. Read more

Ehlers-Danlos Support UK is a registered charity which support, advise, and inform those living with Ehlers-Danlos Syndrome (EDS) and help them live a full, active, and positive life. EDS runs regular events and conferences to bring its community together and produces literature and merchandise to increase… Read more