Family information directory

Alstrӧm Syndrome UK is a registered charity which provides support for those affected by Alstrӧm Syndrome, their careers and professionals working with them. It offers support to sufferers and their families by email and phone. It also provides medical screening clinics, research and produces a… Read more

The BAMT is a registered charity which acts as the professional body for music therapists and a source of information, support, and involvement for the public. Read more

Genetic Alliance UK is a registered charity which aims to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them. Read more

The BSA is a registered charity which offers support to all whose lives are affected by stammering. It aids through a telephone helpline, and self-help groups as well as information and resources through its website. Read more

The Asperger's Syndrome Foundation is a registered charity committed to promoting awareness and understanding of Asperger's Syndrome. It provides training seminars for parents and professionals helping those with Asperger's Syndrome, as well as information and resources through its website. Read more

CICRA is a charity dedicated to creating a wider understanding of Crohn’s Disease and Ulcerative Colitis. It provides support and information for affected children and their families, through telephone and email as well as through booklets and newsletters.  It also raises funds to support approved medical and scientific… Read more

The Great Ormond Street Hospital Charity aims to provide quality care to their patients and families, together with pioneer new treatments for childhood illnesses. They raise money to help hospital refurbishments, fund equipment, support research and provide support services and accommodation to both children and… Read more

The Dancing Eye Syndrome Support Group is a registered charity with the principal aim of providing a link for parents of children with Dancing Eye Syndrome both locally and nationally. It also provides support and information to families of children with Dancing Eye Syndrome. Read more

The Cochlear Implanted Childrens Support Group (CICS Group) is run by parents whose children have cochlear implants to help others whose children already have implants and those who are considering cochlear implantation for their child whether unilateral, simultaneous, or sequential bilateral. Read more

The BDA is the UK’s leading membership organisation and registered charity run by deaf people for deaf people. It delivers a range of services to achieve its aims of empowering deaf people to overcome difficulties that they face daily. Read more