Family information directory

Ehlers-Danlos Support UK is a registered charity which support, advise, and inform those living with Ehlers-Danlos Syndrome (EDS) and help them live a full, active, and positive life. EDS runs regular events and conferences to bring its community together and produces literature and merchandise to increase… Read more

The Cystinosis Foundation UK is a registered charity which aims to provide support to all diagnosed with cystinosis, their families and relatives. Online form available through website Read more

MOVE runs the MOVE Programme, which enables children and adults with physical disabilities and/or complex needs to improve their skills in independent sitting, standing, walking, and transferring whilst working on their own personal and functional goals to reach their full potential. Read more

Nordoff Robbins is an independent music therapy charity in the UK, dedicated to changing the lives of vulnerable and isolated people. It supports thousands of people through our own centres and by working in partnership with a wide range of organisations including care homes, schools,… Read more

Your local provider of Psychological Therapies in Surrey.  Free NHS service.  If you are experiencing difficulties, such as anxiety, depression, panic attacks or obsessive-compulsive behaviour please make contact.  You do not need to suffer in silence. You can self-refer if you are over 18 years… Read more

Patients run the Association for Multiple Endocrine Neoplasia Disorders (AMEND), for patients to support and inform those affected by multiple endocrine neoplasia disorders and their associated endocrine tumours. AMEND provides patient information through booklets and newsletters, it also offers a counselling service and social media… Read more

WheelPower is the national charity for wheelchair sport providing opportunities, facilities and equipment for disabled people to play sport and lead healthy active lives. Read more

Anxiety UK works to relieve and support those living with anxiety disorders by providing information, support and understanding via an extensive range of services, including 1:1 therapy. Read more

Support group for families with children with ASD/ADHD and similar communication and behavioural difficulties. The group has guest speakers and offers the chance to chat with other parents and carers. Read more

Epilepsy Action offers assistance and support to people with epilepsy with a national network of branches, accredited volunteers, regular regional conferences and freephone and email helplines. Read more