Family information directory

Genetic Disorders UK is the national charity working to improve the lives of individuals and families living with a genetic disorder. Information is available online for parents of affected children and information for adults with a genetic disorder. Read more

Reverse Rett exists to accelerate treatments and cures for Rett Syndrome. The charity funds research from basic science to clinical trials, and work to facilitate the translation of this work to clinical applications for people with Rett Sydrome and relate MECP2 disorders. Read more

We coach children to play a non-contact version of rugby called touch rugby. The session consists of regular drills/practice routines then a short game. We are very relaxed about the rules in order to allow a game to take place. The session is run alongside the… Read more

The National Autistic Society's Parent to Parent Service is a UK wide confidential emotional support service, provided over the phone by trained volunteers, who are all parents of autistic children and adults. Volunteers are able to give parents and carers the opportunity to talk through… Read more

Nurture groups offer short-term, inclusive, focused interventions for children aged 4-7 with behaviour needs relating to their emotional development. Schools refer to an area cluster for support. Children remain part of their main class but also attend nurture group classes. Nurture groups assess learning, social… Read more

Physiotherapists work with children and young people aged 0-19 years who may require orthopaedic, respiratory or neurological physiotherapy, or physiotherapy specifically for children who have additional health needs. The physiotherapists advise, assess and treat children on a one-to-one or small group basis, designing therapy programmes… Read more

An inclusive dance and choreography syllabus created from over 17 years experience. Read more

Intensive Interaction is an approach designed to help people at early levels of development, people who have autism, and people who have severe, profound or complex learning difficulties. Intensive Interaction teaches and develops the 'Fundamentals of Communication', attainments such as: use and understanding of eye… Read more

SILC offer a range of specialist training for PAs and their employers including: Good Boss training 6-day 'Support with Confidence' training First Aid Health and Safety Moving and Handling Dementia awareness Autism Spectrum Disorder awareness and training Read more

SignHealth is a charity dedicated to making sure Deaf people get the same sort of access as hearing people to healthcare and health information. This includes supported living, mental health support and healthcare for physical conditions. The DeafHope projects run by SignHealth support women who… Read more