Family information directory

The Colostomy Association is a charity which represents the interests of people with a colostomy.  It offers a telephone helpline to talk to patients as well as offering home visits at request. It also produces advisory literature and a quarterly magazine. Read more

Shaw Trust is a national charity that helps people facing disadvantage into work, gain skills and take control of their futures. It provides work programmes and specialist employment support schemes and helps people gain skills and into work. Read more

CICRA is a charity dedicated to creating a wider understanding of Crohn’s Disease and Ulcerative Colitis. It provides support and information for affected children and their families, through telephone and email as well as through booklets and newsletters.  It also raises funds to support approved medical and scientific… Read more

Stagetext is a registered charity which provides captioning and live subtitling services to theatres and other arts venues to make their activities accessible to people who are deaf, deafened, or hard of hearing. Read more

The charity work to improve the lives of children and young people by providing practical help (such as Sunshine Coaches, bespoke wheelchairs, and specialist sensory and recreational equipment) and memorable childhood experiences. Grants are available to individuals as well as organisations. Read more

Dreamflight is a UK charity that changes young lives through taking children with a serious illness or disability, without their parents, on the holiday of a lifetime to Orlando, Florida.  Read more

The NTF is a charity organisation which aims to provide help, support, and advice to all those living with all forms of tremor irrespective of age. Read more

The BDFA offers informed guidance and support to families and the professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and a cure. Read more

JoLt is a small charity run which aims to make a positive lasting difference to the lives of disabled, ill, neglected and abused young people. Every two years it organises expeditions all over the world for groups of young people (from 14 to 21 years)… Read more

The group was started by parents with Beckwith-Wiedermann Syndrome children to share problems and information and act as a self-help group. It aims to promote both public and professional awareness of Beckwith-Wiedemann Syndrome and to support and encourage research. Read more