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Colostomy Association
The Colostomy Association is a charity which represents the interests of people with a colostomy. It offers a telephone helpline to talk to patients as well as offering home visits at request. It also produces advisory literature and a quarterly magazine. Read more
Colostomy Association, Enterprise House, 95London StreetReadingBerkshireRG1 4QA
0800 328 4257 (24-hour free helpline)
Shaw Trust
Shaw Trust is a national charity that helps people facing disadvantage into work, gain skills and take control of their futures. It provides work programmes and specialist employment support schemes and helps people gain skills and into work. Read more
Shaw HouseThird Flor10 Victoria StreetBristolBS1 6BN
0300 30 33 111
Crohn's in Childhood Research Association (CICRA)
CICRA is a charity dedicated to creating a wider understanding of Crohn’s Disease and Ulcerative Colitis. It provides support and information for affected children and their families, through telephone and email as well as through booklets and newsletters. It also raises funds to support approved medical and scientific… Read more
Pat Shaw House13 - 19 Ventnor RoadSuttonSM2 6AQ
020 8949 6209
Variety the Children's Charity
The charity work to improve the lives of children and young people by providing practical help (such as Sunshine Coaches, bespoke wheelchairs, and specialist sensory and recreational equipment) and memorable childhood experiences. Grants are available to individuals as well as organisations. Read more
Variety House93 Bayham StreetLondonNW1 0AG
020 7428 8100
Dreamflight
Dreamflight is a UK charity that changes young lives through taking children with a serious illness or disability, without their parents, on the holiday of a lifetime to Orlando, Florida. Read more
Dreamflight, Unit 15, Chiltern CourtAsheridge RoadCheshamBuckinghamshireHP5 2PX
01494 722733
National Tremor Foundation (NTF)
The NTF is a charity organisation which aims to provide help, support, and advice to all those living with all forms of tremor irrespective of age. Read more
Long Term Conditions CentreGubbins LaneHarold WoodEssexRM3 0AR
01708 386399
Batten Disease Family Association (BDFA)
The BDFA offers informed guidance and support to families and the professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and a cure. Read more
209-211 City RoadLondonEC1V 1JN
07876 682589
Journey of a Lifetime Trust (JoLt)
JoLt is a small charity run which aims to make a positive lasting difference to the lives of disabled, ill, neglected and abused young people. Every two years it organises expeditions all over the world for groups of young people (from 14 to 21 years)… Read more
The Old ForgeThe StreetChipperfieldHertsWD4 9BH
01923 262185
Beckwith-Wiedemann Syndrome Support Group
The group was started by parents with Beckwith-Wiedermann Syndrome children to share problems and information and act as a self-help group. It aims to promote both public and professional awareness of Beckwith-Wiedemann Syndrome and to support and encourage research. Read more
The Drum and MonkeyHazelbury BryanDorsetDT10 2EE
01258 817573
07889 211000