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Soft UK


SOFT UK provides non-judgemental information and support to parents after a prenatal diagnosis of trisomy 13 (Patau Syndrome) or trisomy 18 (Edwards' Syndrome) and beyond. Support is available for families who have recently received a worrying diagnosis, who are making decisions regarding their pregnancy, preparing for birth, for parents caring for their child with Trisomy 13 or Trisomy 18, and for families experiencing bereavement.

Who to contact

Contact Position
Trustee and National Coordinator
0300 102 7638
Contact via online form on website
  • Updated: 07 Feb 2023