Description

Alex, The Leukodystrophy Charity is all about delivering high quality support, advice, knowledge, and care for those affected by one of the genetic leukodystrophies. Most of these conditions cause progressive neurodegeneration, are untreatable and sadly terminal, and those affected deal with many common factors. Some of the less rare leukodystrophies already have established and reputable support groups providing excellent resources for sufferers, and we signpost to these organisations and endeavour to work in partnership where possible. However, many of the rare leukodystrophies have no support organisation working for them – Alex TLC focuses on the similarities caused by these conditions, embracing all affected within a community of Tender Loving Care.