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PANS/PANDAS UK Charity

Description

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools. One estimate suggests that up to 1 in 200 children suffer from this condition. Resources for parents including diagnostic criteria and details of local support groups. Resources for Medical professionals Resources for teachers and Schools Teacher training package Facebook group for parents/caregivers Facebook group for Young People age 12-17 with the condition. Facebook group for Adults Links to further Research Advocacy and support from the charity Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated. Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists. https://www.panspandasuk.org/for-educators

Location

Notes

All of Surrey covered. We provide support via our Facebook group PANS PANDAS UK.

Who to contact

Contact Name
Vicky Burford
Contact Position
Secretary
E-mail
secretary@panspandasuk.org
Website
https://www.panspandasuk.org
  • Updated: 19 May 2022

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